The governance of biobanks in the digital society

From the identification of unsolved bioethical issues to the conceptualisation of a model

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EDITORIAL: Aranzadi
ISBN: 9788410857032
FECHA DE EDICIÓN: 3/28/2026 12:00:00 AM
Nº DE EDICION: 1

Libro Impreso
Nº PAGINAS: 177
DIMENSIONES: 235x165

DIRECTORES, AUTORES Y COLABORADORES

Autor: Lacomussi, Sofia

MATERIAS

COMPRAR

"The Governance of Biobanks in the Digital Society" explores the evolving role of biobanks within data-driven biomedical research, spotlighting the ethical, legal, and societal challenges. The book conceptualizes a model for biobank governance, emphasizing transparency, data protection, and public participation. Bridging gaps between existing regulations and ethical guidelines, it proposes solutions to unsolved bioethical issues by redefining governance from a participant-data perspective. Rooted in bioethical principles, this framework aims at effective integration with digital innovations while safeguarding constitutional values and public trust.